We’re planning our next Aphasia Day!

Our Aphasia Days are for people with and affected by aphasia as well as professionals working in the local area.

The Wairarapa Aphasia Day in Masterton was held during August 2021. Over 50 people attended coming from the Wairarapa, Manawatu, Wellington and East Coast of the North Island.
Check back here soon for details about our next Aphasia Day.

Mindfulness for Wellbeing: Online Course

A free 8-week course using Zoom for partners/spouses/family members of people with aphasia.

This online group Mindfulness course will be delivered by accredited Mindfulness Teacher and Speech-language Therapist Melissa Delaux.

Starting on Wednesday October 13th from 1-2pm and running until December 1st.

(Thursdays will be considered as an alternative if this suits more people).
Register for the course by emailing us at admin@aphasia.org.nz 
This course is for any partner/spouse, carer or family member of someone with aphasia anywhere in New Zealand. There is no cost to participate – all you need is a reliable internet connection and a computer/device with a camera and audio.

Need help or tips to use technology or get online? Click here for a fantastic newly-released guide to get online for people with aphasia, put together by the Stroke Association in the UK.

Course information is below:

AphasiaNZ Mindfulness Flier Spring 2021

Mindfulness for Wellbeing course info

Informed consent mindful movement

Research Opportunities for People in New Zealand with and Affected by Aphasia

Research studies can allow people to have their say about their experiences, tell others what was good or not so good during treatment or therapy, and help improve the outcomes and services for others who will need help in the future.

Current research opportunities for people with stroke and/or aphasia are detailed below.
Caregiving and Dysphagia: Emily Edgecombe from Massey University is examining the impacts of the caregiving role on quality of life for caregivers of people with dysphagia from stroke in New Zealand and the support needs of these caregivers (educational and well-being supports). Method: online survey.

Criteria to participate:

  • You do not receive financial compensation for your role as caregiver.
  • You are the primary provider of care for a person with dysphagia
  • The person with dysphagia whom you care for acquired dysphagia due to a stroke.
  • The person with dysphagia whom you care for does not have any co-occurring conditions that contribute to their care (e.g., dementia).
  • You and the person with dysphagia reside in New Zealand.
  • The person you care for was diagnosed with dysphagia by a Speech-language Therapist or other qualified professional.

Click here for more information and to participate: E Edgecombe Massey University Auckland 2021

 

Understanding ‘Who You Are’ and what is Important to you in Stroke Rehabilitation: Catherine Vingerhoets is a physiotherapist from the University of Otago (Department of Medicine). Her research is exploring how health professionals elicit information about patient values and preferences in stroke rehabilitation, the experiences of stroke survivors and whanau. How do clinicians get to know you as a person and what is important to you? Method: Zoom interview or face-to-face interview for Christchurch residents (COVID-19 permitting).

Criteria to participate:

Person who has had a stroke: Your stroke was within the last year, you participated in a rehabilitation programme in hospital, and you are over the age of 18.

Family/whanau of stroke survivor: Your loved one had a stroke within the last year, you were involved in his/her hospital rehabilitation, and you are over the age of 18.

Click here for more information and to participate: Understanding ‘who you are’ and what is important to you in stroke rehabilitation

 

Bilingual People with and Affected by Aphasia: Darshana Suresh is a MSLTPrac student from the University of Auckland. Her research is exploring the experiences bilingual people with aphasia and their families have had when accessing or using health or support services. She wants to understand more about the needs of those who speak more than one language, to see how SLT (Speech-language Therapy) services can be improved. Method: 1-2 hour interview either face-to-face (COVID-19 permitting) or online using Zoom or Skype.

Criteria to participate:

People who have had aphasia for at least 6 months, who use or know two or more languages. Family members can participate also.

Click here for more information and to participate: Darshana Suresh University of Auckland August 2021